Sunday, December 30, 2018

Every Day is a Blessing

I'm an avid scrapbooker, I love to document all of our favorite memories.  Our quirky family traditions, any moment I can come up with an excuse to make a scrapbook page for, I'm on it.  I've been a scrapbook fanatic since I was a preteen, it is just something I really enjoy doing.  I enjoy living life, I enjoy every second of making the memories, I love to be able to relive it as I create fun layouts for others to enjoy in the future.

In our family we are thankful for every moment we have together, we don't sweat the small stuff.  Even the smallest of events feels like a miracle.  We cherish what we have because we realize how quickly it all can change.

10 years ago, life as we knew it changed forever.  On Monday, December 29, 2008, our son Blake was diagnosed with Acute Lymphoblastic Leukemia.  He was considered high risk, and we instantly plunged into a world we had zero knowledge of prior to that day.  Suddenly, the little bald child you see on the commercials was our child.  We learned what Absolulte Neutrophil Count meant, and how to mask chemo pills and steroids by crushing them up and serving them in pudding.  We learned what wrestling holds worked best to hold our child still while his port was accessed, so he wouldn't kick his nurse.  We learned what a port was.  We learned that Blake's cancer treatment would include countless spinal taps, port accesses, surgeries, chemo doses, hospitalizations, clinic visits... We learned that these little bald boys and girls going through the same, or similar treatments were somehow some of the very strongest people we would ever encounter in our lifetime.  Each child we witnessed going through childhood cancer had an impact on our lives.  We still cheer for each and every one of the survivors as they hit milestones, so many of them are in their teenage years now, it is really, truly amazing to see.  And as we cheer for the survivors, we mourn those we knew, who passed away, those cancer took, long before it was their time.


We learned that steriods are no joke and two year olds can have some major roid rage.  We started drawing our stick people with ports, iv poles and hospital gowns and masks.  

Beyond any of those things we learned not to sweat the small stuff.  To appreciate every moment as the gift it is.  We watched other people's children slip away, we watched families lose their youngest, smallest members.  We realized that this was something that could happen to us.

Thankfully, our story has a happy ending.  Blake responded quickly to his treatments.  The medical team in charge of his care was absolutely amazing and they saved his life.  We thank God every day for that.  


Blake has been cancer free and off chemo long enough to be considered cured now.  Not just in remission, but cured!  He is a bright, loving, engaging 12 year old, 7th grader.  He adores his little sisters and is such a central part of our family that it is just absolutely impossible to imagine what our family would have been like without him in it.  He plans to do big things in his future, and he has already done big things, he beat cancer, he maintained a positive outlook.  He brought tons of prayer warriors together, and he continues to push forward, learning, adapting, facing any obstacles with a fire in his eyes and an eagerness to live.  

This 10 year anniversary is something we can now celebrate, not because we are glad that Blake had cancer, of course we would rather he not have gone through that, but because of all we learned, how much we all have grown, and the renewed ability we all have to appreciate every single moment of life.  We live life to the fullest now because of this kid and all that he has endured, all that we have endured together.  We have a gratitude to God, to our prayer warriors, to Blake's medical team, our friends and family, everyone who crossed our path.  




Sunday, September 27, 2015

What Childhood Cancer Awareness Month Means to me

My family has been dealing with a stomach bug the past few days.  This evening, as I wash the things that have been thrown up on, I am thankful.  I know that sounds funny, but I am so thankful for all three of our sweet children.  I am thankful for every second that I have them in my care, every moment that my husband and I get to cherish them and teach them the beauty of life.  Now, I get to the hard part.

  September is a hard month for me.  It is Childhood Cancer Awareness Month.  As the mother of a Cancer Survivor, I want September to be a joyful month, when we celebrate that our son is a survivor, and trust me, we do celebrate that, but September is hard.  You see, I always think about the families who don't have the same outcome.  I think about the parents and siblings who see the empty chair, the empty room, the empty spot in the car.  The families who had to bury their CHILD because of cancer.  The doctors do everything they can do, the nurses, the families, they fight tooth and nail for their children.  They all have their prayer warriors working overtime, praying for a miracle.  The reason we still fight for awareness, the reason we still fund-raise, the reason we let our past hardships be known is because we don't want this harsh reality to happen to any more children, any more families.  It hits really hard when anyone is lost to cancer, but it hits hardest for us when it is a child.

  This year multiple friends of ours lost their children to cancer.  Their beautiful, happy, energetic children who were so full of life, fought hard, they had people praying round the clock, they did EVERYTHING they were supposed to do, yet their children lost their lives to Cancer.  Every day, they live with that reality, every day, they see that spot at the table, that gap in their family photo, that empty room in their house.

  I share quite a bit of cancer information throughout the month of September, and all year really.  I have to admit, sometimes I feel like I do awareness a disservice, I don't want to talk about how hard it was, how much our son Blake had to endure with his treatments.  How we got attached to other families and watched their journey through cancer treatment and prayed for them too.  How heartbroken we are when any child died/dies from this horrible disease.  I think people don't want to hear that, I smile and say Blake is doing great, because, really he is.  We are so thankful for that, we are so thankful for the prayers, the medical team, the friends and family who saw us through all of it.  We just want to do more, we need to do more, for those who are still fighting, for those who lost their lives to cancer.

  Blake had ALL in his B cells, He was diagnosed at 2 years and 4 months old, he had one of the most common types of childhood cancers and he was in the age range that responds best to treatment and has the highest cure rates.  There are so many levels that we had the best case scenario (aside from the diagnosis of cancer).  What Blake went through to treat his cancer was REALLY HARD, especially for a child.  Other kids have even worse diagnosis and treatments, and way too many kids do not survive.  While we celebrate Blake's life, his survival, we cannot even begin to express the profound loss we, as a community of cancer parents, healthcare providers, prayer warriors, etc. feels every time a child is diagnosed with cancer, or loses their life to cancer.

  If you have questions please feel free to ask us any time, I will always do my best to answer with complete honesty.


Monday, December 29, 2014

6 Year Anniversary of Diagnosis

Blake right after his first surgery, Dec 30th, 2008


Daddy with Blake and Alexia

Family photo!


Blake, currently cancer free. 
Posing for a picture for Childhood Cancer Awareness Month
2014

It seems like so long ago, but the memories are all still fresh in our minds.  Blake's diagnosis day will always be an anniversary, although we have a bigger anniversary now that we always celebrate, April 21st, 2011, Blake's last dose of chemo.

We are still overwhelmed by all the blessings that were poured out on us while Blake was in treatment.  The kind words, prayers, gifts, meals and most of all, the care of an amazing medical team that had Blake's best interest at heart every step of the way.

We don't really celebrate diagnosis day, it is still an ache in our hearts that Blake ever had to go through the long and strenuous treatments, we still don't know all the different side effects his medications could have caused.  What we do know is that he is here.  We can hug him, we can see him.  We have conversations with him.  He is such a sweet kid, he has the biggest heart.  To meet him is to love him and that is even for people who don't even know what he has been through already in his life.

Blake still has wellness checks every 3 months to make sure the cancer has not come back.  His last one was late November, it is all clear counts and blue skies for him.  To celebrate we went to Disney, out first time there in 5 years, our first time back after his Make-A-Wish trip.  It was such a blessing, we had so much fun.

We have all grown through the process, we are all that much more thankful for what we are blessed with.  We may seem extra optimistic, a little too Pollyanna for the dismal world we are living in, but we wouldn't have it any other way.  Having been where we've been and after seeing what we've seen, we know what could have happened.  We know we could have an empty spot at our dinner table, an empty place in our pictures.  We are so thankful for the time we get to spend with our miracle boy.

We still have friends who are going through a similar, painful experience, with children in the process of being treated for cancer.  Our hearts break whenever we hear of a cancer diagnosis, especially a child.  For those who have prayed and are praying for Blake, please add his little friends in your prayers.  No child, no family, should ever have to go through this.  While we count our blessings, we pray for them to be where we are, 6 years from now, counting their blessings as well.

Words can not express how thankful we are.

The Parrack Family

Saturday, December 27, 2014

Sunny Florida, Day 1

Briana is ready for her first flight!

The kids are ready to go to Florida!


Family photo op, minus Daddy, Papa and Mommy (was taking the picture)


Alexia and Daddy on the Ferry to Magic Kingdom!

We can see it!!!


Alexia and Mama on the People Mover!

Briana and Daddy with Papa and Uncle Liam on the People Mover

Briana is driving Mr. Daddy


7 Dwarfs Mine Train ride


Oh no!  The Evil Queen!


Look at those naughty kids!  ;)


Heading back on the Ferry


Back at our Disney House (as the kids called it)

Siblings!

Sisters!

So, I kind of cheated and am posting our travel day along with our first day in Florida, but I figured you guys would forgive me!  :)

The kids (and grown-ups) all did great on the plane!  The flight was fast, straight through, no connecting flight!  We got our rentals and headed straight to our Villa.  We scoped out the resort, ate amazing food, went swimming and soaked in the hot tub!

Our first Disney day, we headed to Magic Kingdom bright and early.  We had a great time going on rides and seeing all of the sights!  The park closed early (8pm), so we headed back to our "Disney House" for dinner and R&R time.  The kids had so much fun.  It was so fun watching them enjoy the magic!

Friday, December 19, 2014

Fall 2014 Part 2


Some pictures from Blake's class party!  
Love this school!



Our kids all dressed up!





At the Fall Festival at Church!

Faces painted


Aunt and Uncle at the trunk-or-treat!


Eating cotton candy!



Decorating the trees!












We've had a great fall!  We spent a lot of time in our yard and at the park!  Now that our youngest is getting older, we are able to participate in more and more activities!  The kids are just amazing, it is such a blessing to get to see the world through their eyes, to watch them learn and experience things.

We were blessed with amazing weather this fall!

Sunday, December 14, 2014

Fall 2014 Part 1

We are very active as a family, so we got many outdoor pictures this fall!


Nature walk!




Zoo




Pumpkin Patch











School Field Trip to Vala's






Visit with Mama Bare and Papa Bare 
and Cousins in Joplin




Pumpkin carving!




More to come in Fall part 2!